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This is the story of Michael Mainland’s incredible ordinary life. Michael is 38 years old, works at Boston Pizza, has his own house, lives with a roommate and volunteers regularly. What may come as a surprise to some is that Michael has a developmental disability that caused him to become non-verbal and reduced fine motor skills as he grew older.

 

Michael’s Story in Starting in High School:

I had the opportunity to interview Michael’s mother, Alice Mainland, to learn Michael’s story and to learn how Michael has created his ordinary life.

In the 2 months before Michael graduated from high school, Michael and his family realized they had a problem; there would be nothing for Michael once school ended. One of his parents would have to stay home to support Michael, and the family would drop down to a single income. Alice started making phone calls to various support agencies, local government, and basically anyone with a phone number that might be able to help. The people she called were willing to help! With the support of a few agencies the family was able to piece together support for Michael and this allowed the family to stay a two-income family.

Alice shares, “You don’t know what resources are available to you until you ask. “

 

At 29, Michael had the opportunity to move out of home because of a conversation 4 -5 years earlier when Alice was searching for support for Michael.

 

 

Michael’s Life Today:

 Michael’s family purchased a duplex where Michael lives with a roommate in one unit, and a supportive neighbor lives in the second unit who is available for overnight support. The family focused on creating a great home for the supportive neighbor, and this strategy has been effective at attracting and retaining long-term tenants.

The first few weeks Michael lived on his own was a worrisome time for Alice and her husband, however their worries didn’t become a reality. 

During the week Michael lives at his own house, works at Boston Pizza, and volunteers at the local foodbank. On weekends, Michael gets to spend quality time with his parents on their rural property. Alice and Michael often run errands on the weekend in town and Michael has 2-3 times the number of people saying hello to him compared to his mother. This is a great sign that Michael is building relationships in his community.

 

 

What’s next for the family?

 

Michael’s family is thinking about things like, who is going to take care of the house when Alice and her husband aren’t there?  Who will help Michael make decisions? To ensure continuity in Michael’s future his family is looking at forming a micro-board. The purpose of the micro-board will be to help manage the home, and to help Michael make future decisions.

 

 

Lessons we can learn from Michael and his Family on living an ordinary life:

 

  1. Ask for help. Michael’s family reached out to anyone with a phone that might be able to help them. The people on the other end of the phone had good intentions and wanted to help.

  2. Environments where he can learn from his peers. Regular school classrooms (shop and gym for Michael's), working at Boston Pizza, volunteering, the Special Olympics.

  3. Opportunities to show off his skills. Michael loves to show off what he is good at from work to his recreation of horseback riding.

  4. Proloquo2Go.  Michael is non-verbal the Pro lo to go app on his iPod empowers Michael to express himself more fully with others. 

  5. Let go, and let in. Over time Michael’s parents have had to let go, which has allowed Michael to become his own person. The family has also had to allow other people to enter and be a part of Michael’s life. (Without interviewing them first!). At some point, someone else is going to have to be there for Michael other than his parents.

 

I thank Alice for sharing her family’s story. There are great insights and lessons that we can apply to our own situations.

Our mini-series on housing for people with disabilities is continuing so go ahead and Subscribeto the mailing list to get all 6 episodes sent directly to your inbox!

  

Love & Respect,

Eric

 

 

Resources:

 Proloquo2Go - symbol-supported communication app - Click Here

  

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